I was diagnosed with MS when I was 15 years old. At the time, I believed that this was a good time to have a diagnosis like this. Science is cool and new medications were on the horizon. That was true. Nearly 22 years later, I am privileged to say that I have been given access to all of the newest scientific things. I’ve been part of clinical trials. I’ve had early access to new drugs. I’ve experimented with taking care of myself in different ways, some of which I felt helpful, most of which, have left me feeling disappointed and disheartened. My MS condition has progressed to secondary progressive disease, despite my best efforts.
If you told me that stimulating my tongue with a PoNS would improve my walking, I wouldn’t have believed you. While I use my walker to help me move, I’m not bearing weight on it, my bodyweight not shifting from side to side. I stand up straight, my shoulders are back, and my neck is long. My right leg, the one that has moved a bit like a tin leg, bends.
I don’t know that there’s ever a good time to have a neurodegenerative disease, age and wisdom, or something, but for me the technology made accessible by Helius is a great thing. And I’m excited to see what happens next.